I was diagnosed with primary sclerosing cholangitis after a year of procedures and testing when my liver enzymes were found to be elevated on my annual physical. It was a scary time … the doctor sent biopsies for targeted genomic sequencing which allowed him to see if I had any type of cancer that they were not able to see without further testing. By doing the targeted genomic testing, they discovered there was no evidence of cancer at this time. This testing allows doctors to treat underlying cancer and other illnesses early, thus saving lives … after my case manager at PAF exhausted my internal appeals with [the insurer}, she knew the next steps for an external review, what was needed and where to send it … the outside reviewer overturned the decision and my targeted genomic sequencing was covered! Thank you PAF for all your hard work and help!


I am a single person … I have been dealing with my illnesses as well as I can on my own but had run into a wall. The information provided by PAF will be useful in navigating my life on my own for a while longer which means the world to me. I am thankful for all you do.

Mark | Crohn’s disease